One of the mom's in my online support group is coordinating a walk for 22Q! I think this is a pretty big deal since many people are not familiar with the diagnosis. It's going to be held in Glen Ellyn on Aug. 22. I posted a link if anyone's interested in more info.
http://ramonamae.com/2009/slow-and-steady-a-walk-for-22q11-awareness/
Here's a link that tells about her little girl, Ramona.
http://ramonamae.com/the-begining-of-the-story/
No comments:
Post a Comment