One of the mom's in my online support group is coordinating a walk for 22Q! I think this is a pretty big deal since many people are not familiar with the diagnosis. It's going to be held in Glen Ellyn on Aug. 22. I posted a link if anyone's interested in more info.
http://ramonamae.com/2009/slow-and-steady-a-walk-for-22q11-awareness/
Here's a link that tells about her little girl, Ramona.
http://ramonamae.com/the-begining-of-the-story/
Thursday, July 9, 2009
Wednesday, July 8, 2009
Legoland and Build-A-Bear
What a fun, fun day with the kids! Paul had the day off for the 4th of July holiday and we decided to surprise the kids with a trip into Schaumburg to go to the Legoland Discovery Center and then lunch at Rainforest Cafe. After further discussion Thursday night, we decided that Paul would take the boys to Legoland and I would take the girls to Build-a-Bear at Woodfield and then we would meet for lunch at Rainforest Cafe. It can be very pricey to get into Legoland, but we discovered a great deal--it was Pirate weekend at Legoland! If your child dressed up like a pirate they got in for FREE! Woo Hoo! We did not have pirate garb on hand so Taylor drew a pirate shirt for Nicholas and we colored her eye patch black, put a bandana on his head and he was good to go!
What a fun, fun day with the kids! Paul had the day off for the 4th of July holiday and we decided to surprise the kids with a trip into Schaumburg to go to the Legoland Discovery Center and then lunch at Rainforest Cafe. After further discussion Thursday night, we decided that Paul would take the boys to Legoland and I would take the girls to Build-a-Bear at Woodfield and then we would meet for lunch at Rainforest Cafe. It can be very pricey to get into Legoland, but we discovered a great deal--it was Pirate weekend at Legoland! If your child dressed up like a pirate they got in for FREE! Woo Hoo! We did not have pirate garb on hand so Taylor drew a pirate shirt for Nicholas and we colored her eye patch black, put a bandana on his head and he was good to go!
Outside Legoland--you can barely see Nicholas under the giant Lego giraffe
Nicholas standing in front of a lego model of the city of Chicago
Nicholas learning about how Legos are made at the Lego factory
Aron has no idea where he's at but enjoys watching all the people
Hard to decide which Nicholas thought was cooler...Batman or.....
R2D2
Here we are at Build-A-Bear. Addison is standing in front of the machine with all the stuffing for the bears and when she first saw it she said, "I want a snow cone mom!"
Taylor picking out clothes for her "Hannah Montana" bear
Taylor and her bear, "Jewel"
Addison was so proud of her bear, "Sally". She picked everything out all by herself--right down to the
UNDERWEAR!
The girl's have their bears and are ready to do a little shopping before we meet Dad and the boys at Rainforest Cafe.
Aron liked watching all the fish. That was better than eating lunch--surprise, surprise!
The kids are sitting on the edge of the water where the crocodile was; which is why you don't see Aron in the picture. I was afraid he'd end up in the water if I tried to get him in the picture. Maybe another time!
R2D2
Here we are at Build-A-Bear. Addison is standing in front of the machine with all the stuffing for the bears and when she first saw it she said, "I want a snow cone mom!" 
Taylor picking out clothes for her "Hannah Montana" bear
Taylor and her bear, "Jewel"
Addison was so proud of her bear, "Sally". She picked everything out all by herself--right down to the
UNDERWEAR!
The girl's have their bears and are ready to do a little shopping before we meet Dad and the boys at Rainforest Cafe.
Aron liked watching all the fish. That was better than eating lunch--surprise, surprise!
The kids are sitting on the edge of the water where the crocodile was; which is why you don't see Aron in the picture. I was afraid he'd end up in the water if I tried to get him in the picture. Maybe another time!
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